You did such a wonderful job on the montage. Everytime I watch one it makes me cry. Even though I know all the facts about cf it hurts so much to read them. Anyway just wanted to tell you...great job!
Thank God that I found your blog. My son is having his sweat test for CF tomorrow and I am a wreck. Reading your blog might help me to sleep tonight (something I havent done since the possibility of a CF diagnosis was even mentioned). My son was born small (4 lbs 15 oz), full term, but hasnt gained weight (he is almost 10 months old and 13 lbs), he has a lot of congestion, throws up every day, and no dr has been able to give him a diagnosis yet. Its been 10 months of hell. I havent been able to enjoy my baby yet, the worry takes over every single day. Countless hospital visits and so many appointments have left me so weak and bitter. At least when I read your blog (even though my son might not have CF) it makes me feel not so alone. Thank you.
I am the proud wife of Dan and the loving mother of Luke.
On February 12th, 2008 Luke was diagnosed with Cystic Fibrosis. This has been life changing for Dan and I but Luke is thriving since his diagnosis.
We are constantly learning to put our faith in God as we handle all of the situations that CF throws at us.
We have an incredible support team of doctors, family, and friends. With all of their help and most importantly with God's help we are going to try and beat the odds.
I am hoping to raise awareness of Cystic Fibrosis. I don't wish what we are going through on anyone else and I pray that they find a cure very soon.
Thanks for reading my blog.
He is my hope
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3 comments:
You did such a wonderful job on the montage. Everytime I watch one it makes me cry. Even though I know all the facts about cf it hurts so much to read them. Anyway just wanted to tell you...great job!
looks great! good luck with your fundraising for luke's legion!
Thank God that I found your blog. My son is having his sweat test for CF tomorrow and I am a wreck. Reading your blog might help me to sleep tonight (something I havent done since the possibility of a CF diagnosis was even mentioned). My son was born small (4 lbs 15 oz), full term, but hasnt gained weight (he is almost 10 months old and 13 lbs), he has a lot of congestion, throws up every day, and no dr has been able to give him a diagnosis yet. Its been 10 months of hell. I havent been able to enjoy my baby yet, the worry takes over every single day. Countless hospital visits and so many appointments have left me so weak and bitter. At least when I read your blog (even though my son might not have CF) it makes me feel not so alone. Thank you.
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