Wednesday, November 12, 2008


I have forgotten to mention that Luke had his Infant PFT several weeks ago and the results were beautiful! It's always interesting trying to get ready for those because they are so early in the morning and I have to fight morning traffic with a crying baby in the backseat because he wants to eat. However, I can't make the crying baby stop because I am not allowed to give him food for sedation reasons and he is sleep deprived anyways so I couldn't make him happy anyways.

So after I finally got there with my screaming child, I realized that we were a half hour early. I could promise you that the last time we had one I had to be there that early! Thankfully though, Luke's tests came out above normal and his lung function is not a problem at this time. We also found out that the albuterol that we have been giving him for months is not really doing anything so we were able to cut it out. I only have one tiny breathing treatment to give Luke every day! I still do 2 airway clearances but 1 breathing treatment frees up so much time in my day. I think that Luke likes it better too because he doesn't fight as hard during his Chest PT.

With all that free time you would think that I would be blogging like crazy right? Well actually I have been fighting this ear infection and blogging was the last thing on my mind. Luke has been sorta left to himself a lot as I just sit in front of the tv trying to hear what is happening. I miss those days before I was married when I actually COULD sleep all day. I think that I took those for granted *sigh.

I want to share a couple of pictures showing Luke doing what he does best. Snacking! Oh and riding on his little car thing. He likes his little car thing and will sit there for hours :) It's really cute.


Alicia said...

That's great news!!! So happy to hear it! said...

Thanks so much for bringing attention to cystic fibrosis - great blog!