Thursday, October 30, 2008


I am sorta irritated right now. Luke's nurse was supposed to call in Bactrim yesterday but nothing has happened. AAAAHHH does she not realize that I have been calling Walgreens and checking on this prescription for 2 days now? It may only seem to be one little prescription but my mind keeps thinking that it may help keep him out of the hospital. Oh well, I guess it will all work out.

Dan and I had a great time last night meeting a young man with CF. He's 20 and goes to DePaul University so he was able to walk right over to the hospital and meet with some of the parents who have children recently dx with CF. It made me feel better to see a nice looking, well adjusted, kid who has CF. Sometimes I fear that Luke will be odd or have some weird issues because of this. I will say that one of the things he impressed upon us was that it was his parents that helped him have the correct outlook on life. That is a huge task that Dan and I feel we have to start doing even now.

Anyways, this was rather an odd post but I guess I just had to get some things out of my system :) I must now go face the Ravioli covered bundle of energy who is my son.


Alicia said...

I hope you get your Bactrim ASAP. So glad you got to meet an adult CF-er. That's great that he came and talked to you guys!