Wednesday, March 11, 2009

Clinic Update

Just wanted to update everyone on Luke's latest excursion to see his favorite people, his CF dr and nurses! I really am starting to think that they are his favorite people too :)

Anyways, he has gained a whole kilogram since last visit (about 2.2 lbs) and so they were very happy about that. Even though he is on a hunger strike right now they didn't seem too concerned about it. They feel it is because he is getting about 4-6 teeth right now. Poor little guy :(

They really don't think that the wheezing and coughing that has been going on is due to CF and in fact they feel that it is an asthma component. It wouldn't really surprise me because it runs on Dan's side. They started him on Singulair and they feel that the Flovent he started 2 weeks ago will make a huge difference. We just have to give the Flovent another 2-3 weeks to start fully working though.

He got his PICC line pulled so that was huge for us! I hate having that thing on his arm. I know it is there for a reason but have you ever tried to keep an 18 month old clean? It's nearly impossible! Trying to give him baths is an epic fail because he can't get his line wet and wrapping it in a diaper doesn't even keep it dry when a little 18 month old decides to splash. Needless to say, he is about to take a nice long soak in the tub.

Today we have an appointment to go to the Wheaton Eye Clinic for his lazy eye. I have no idea what is going to happen there. They did tell me to prepare for a 2 hour visit so I guess I am going to have to pack the boys room. Keeping him entertained is quite an ordeal! Hopefully we will know more about what they are going to do for his eye by the end of the day.


Carrie said...

Sawyer is on Cingulair has really helped him. He has been on it for a couple of years. He is so wheezy right now though...he has a bad cough!
That is great about the weight gain..I so wish Sawyer would gain some weight!!

Emily said...

Have you ever tried wrapping his arm in saran wrap, or a garbage bag, and securing it with medical tape? Whenever I had PICC lines, that is what we did, and it seemed to work a lot better.